***** Sarah Kirsch // 1970 - 2012 ******
Sarah passed away peacefully at home in her favorite chair on the afternoon of December 5th, 2012. She was on the upswing and had been making enormous physical and emotional strides since the Fanconi Anemia diagnosis she had received earlier this year. Sarah meant so much to so many different people, not just in her wide circle of friends, but all over the world. A memorial and celebration of her life will be held at 924 Gilman on January 6th - details will be posted soon.
The incredible sum you see on the right, the result of so much generosity that Sarah was endlessly grateful for, has unfortunately been entirely depleted. The need for financial support remains urgent, and, as has always been the case, every little bit helps.
Here are some other words that commemorate Sarah and her unique and inspiring life:
* An Important Update and Appeal for Sarah (September 5, 2012) *
Dear Friends and Family,
We cannot adequately express how grateful we are for the support you have given us through this impossible time. Sarah's health and spirits have strengthened so much thanks to the emotional and financial support she has received from the community in recent months. We could not have made it this far without you.
Unfortunately, the progression of Sarah's rare and complicated illness has not followed an ideal path. Her bone marrow—wherein resides Fanconi Anemia, the disease that put her in the hospital and that she continues to fight—has begun to gradually come back, meaning that her body cannot produce blood cells as it should. Although it has only regained 3% of her body's marrow, according to recent preliminary test results, as compared to 97% percent post-transplant marrow, this small amount is sufficient to cause concern amongst her medical team that more must be done before the transplant can really take effect.
In short, unfortunately Sarah must now undergo more chemotherapy in the coming months. This chemo will be aimed at suppressing the diseased marrow and allowing the healthy, transplanted marrow to fully take over.
Chemotherapy has always been quite difficult for Sarah, and now seems to be an especially unideal time to undergo such a devastating procedure. Sarah had been starting to gradually return to a more normal routine of life—going outside, spending time alone, even driving and playing some music—and a regimen of chemotherapy means an unwelcome regression to where we were many months ago, when Sarah couldn't go out to public places or eat at her favorite vegan spots due to her body's inability to combat infection and the toll of chemotherapy.
We are reaching out to the community with another call for financial support—for rent, groceries, gas, money to pay for caregiving assistance, copays for hospital visits, cleaning supplies, emergency funds, etc. All of these things add up very quickly and make an already impossible situation that much more difficult. Any support you can offer is extremely appreciated and no donation is too small.
Again, Sarah and those close to her are SO THANKFUL for the support that has already come our way. Though all of us (and especially Sarah both for the time-being and likely for a significant time to come) can't reach out to all of you individually who have shown support in so many ways, it is truly inspiring and incredible to receive support and read the messages that so many people have to offer us. Please accept this general THANK YOU and know that you have contributed in a great way to sustain all of us in this time of extreme need.
Sarah's Friends and Caregiving Team
****Original Appeal (Fall 2011)****
Our good friend Sarah Kirsch was diagnosed over summer with Fanconi Anemia - a rare genetic disorder that causes Leukemia & other cancers. Despite being put through the 'fn ringer by chemotherapy, a bone marrow transplant, and long hospital stays, Sarah is staying strong and fighting hard, finally out of the hospital and at home with her amazing partner Jess and loving caregivers, Paul and Ilya.Aside from the unconditional emotional and physical support Sarah has received from her devoted extended family, donations to date have been enormously helpful in lightening the financial burden of this kind of illness. The demand for supplies not covered by insurance is, however, unending - from food to cleaning supplies to lotion to kleenex to parking at the hospital... There is no donation too small, every $ helps.
Nate L Powell
Joseph D Bowen
Rachel L McLean
Charles R Booher II
Kimberly L. Carlyle
- Aragorn Moser
- Nate L Powell
- Shane Smith
- Joseph D Bowen
- Rachel L McLean
- anandi worden
- Ashley Rowe
- Benjamin Sizemore
- Lee Worden
- Casey Watson
- chiara galimberti
- Charles R Booher II
- Kimberly L. Carlyle
- Patrick Libby
- eric butterworth
- Maximiliano Frixione
- anita zuckerman
- Carrie Crawford
- Steve Aoki