I know Sean through his sister Jaedyn who is my age (21) although we know each other through his sister, he has become a friend of mine as well along with his sister Kassie. Sean is only 18 years old and he suddenly got ill with a fever of almost 105 degrees. He was initially diagnosed with a bad case of Mono due to his swollen liver and spleen. He was then diagnosed with double phenomena. Sean had to be put into a coma and on life support and by the morning his kidneys, liver and lungs had failed.When he was stable enough for the ride he was airlifted to UIC (University of Chicago)'s medical center for treatment. During the ride his lung collapsed and by the time he got to UIC he was going into cardiac arrest. Sean's health condition is so rare that it took 24 hours of all the doctors at one of the best hospitals in the nation to consider HLH as the probable diagnosis,. Through a bone marrow test, Sean was officially diagnosed with HLH (Hemophagocytic lymphohistiocytosis) a very rare blood disease that was causing his organs to fail.
The treatment for HLH is chemotherapy and he will possibly need a bone marrow transplant in the future.
Sean got his first doses of chemo while he was still in a coma and on life support he was able to endure the treatment despite his fragile state and has responded extremely well to the chemo.
Sean has since come out of the coma and is breathing on his own. His kidneys are now working again and his liver is looking much better.
Next week, if all goes as planned Sean will be at home and will become an outpatient for his chemo. This is great news. Although it will be a long road for them the most important he is fully awake and back to being himself. He's a great person that I'm lucky to know. He's kind and funny and can lighten anyone's mood just by being himself. No one has felt the worry, pain, hope and joy of Sean's fight against HLH more than his family. Sean has proven with how quickly he has progressed, that there should have never been a second of doubt, Sean is a fighter. He has made it through so much already I know he is strong enough to endure the road to recovery. He isn't going anywhere and he has already survived so much.
I am setting this fund up for his family because they deserve to celebrate Sean's improvements and him finally being able to go home without having to worry about the medical bills. You can't put a price on life, money could never compare. However, this is something I could set up for the family and for Sean that hopefully will help them breathe a little easier.
Sean has been in the hospital since March 11th and on life support for around a week as well as being in critical condition the majority of the time he's been hospitalized. The hospital that Sean was airlifted to is about an hour from our home town. The family as a whole has missed a lot of work to be at Sean's throughout it all. I have no doubt the constant presence of his family and knowledge they would never give up their belief in him that he was strong enough to survive and fight this. However, I am sure adds to the impact and stress of paying the bills for his hospitalization and treatment.
Any donation amount will be helpful and greatly appreciated.
All donations will be deposited into Sean's bank account where his parents and family as a whole can decide how the money will help them the most.
Sean's mother and sister Jaedyn have full access to this account and the ability to deposit the donations into a bank account for Sean. No money can be deposited or withdrawn from his account without their knowledge. I will never have possession of any of the money nor any access to it that his family wouldn't know about instantly.
If you have any questions about the family's access to the account or need to verify that they receive all of the donations feel free to verify it with Jaedyn here: https://www.facebook.com/jaedyno
If you cannot donate then please try to keep Sean in your thoughts and/or prayers.
- Amanda Anderson (Friend of Sean & his siblings)
PS: If you're worried that your payment or card information isn't safe there is a website FAQ at the bottom of the webpage that will reassure your information is safe. The amount you donated personally is private and won't be shown publicly anywhere on this page. Any amount counts.