Three years ago I was chasing Metallica around center stage. Now I'm essentially homebound, in a wheelchair, hooked up to an IV pump and on oxygen 24/7, and have been hospitalized 4 times this month (8/2012) alone.
My Macbook has become increasingly important to me not only as a way to edit my photography and conduct business, but to schedule appointments,keep track of doctor appointments, carry medical records, and as my illness progressed, as a means to communicate when exhaustion or medical issues prevented me from doing so otherwise.
After surviving however many Warped Tours, sleeping at Greyhound stations on skid row, and being water bombed with Marilyn Manson, it broke. With estimates for repair bumping up higher and higher whenever they replaced a part and couldn't get it working, it was getting ridiculous to throw money I didn't have at it, and need to spend on rent/food/utilities/my kids (and providing them with all of that) first.
From the Regretsy charity effort:
"Simply put, Misery has been through hell.
Diagnosed with rheumatoid arthritis and fibromyalgia at a young age, she was completely disabled by the time she was in her early 20′s. Even so, she was able to work part time as a freelance illustrator, and raise twin daughters.
Misery was bitten by a tick on a camping trip, but it took close to a year to diagnose her with multiple tick-borne infections (Lyme, babesiosis and human ehrlichiosis). By then, she had developed encephalopathy and Bell’s Palsy. She was bedridden and blind.
With treatment, she managed to regain her eyesight. But she soon began having seizures and lapsed into a coma after a mild stroke. Afterward, she was unable to draw, so she turned to photography. For 3 years, she was able to get to gigs, edit and publish images. She was picked up by an agency that handles concert photography, and her blog was indexed as a news site by Google News.
Then, after collapsing at a concert, doctors discovered that two of her heart valves were damaged. Over two years, the complications and secondary conditions had resulted in numerous brain lesions and a degenerating spine.
After multiple surgeries, Misery is now hooked up to an IV pump three times a day, and is on oxygen 24/7. Nurses come several times a week to give injections and change dressings, and one of her daughters is employed full time via the county as her home health aid, handling a dozen other meds as well as keeping up the house.
All the thank you's in the world to HKApril and my fat jealous loser guardian angels at Regretsy for doing this incredible thing for me. When they told me about the results of the April's Army campaign while I was in the hospital, I cried until I threw up, and that's gotta show real gratitude right there.
Thank you, guys, much love,